Mar 18 2007
Alexa’s Story!
This is Alexa. 2 months before getting diagnosed
My name is Lauren Meader. This is my story, of how my love for stamping was able to be used in turn to help raise money for a Cure.I am a stay at home mother of three. Alexa- 7, Noah- 4, Amber- 3.I began stamping over three years ago while i was pregnant with my third child. Being home with the children everyday was fulfilling, but I sometimes felt like I needed some time for me.I was first exposed to stamping by my mother-in-law Charlene. I was always in awe of the beautiful hand stamped cards she would make me for every occasion. Myself having no artistic talent, cannot even draw a decent stick figure. So, after getting a gift certificate to a local craft store for my birthday, I decided to give it a try. One flower stamp, black ink pad, set of colored pencils, and a note card pack later, here I am, totally addicted, and loving every minute.I fell in love with stamping because it allowed me to be the artist my artistic talent couldn’t. I found it to stimulate my brain, yet relaxed me all at the same time. I fit stamping in every moment I can. Most of the time I spend is after my husband gets home from work. He takes on making dinner, bath duty, and story time. He has been very supportive of my stamping hobby from the start. He is the one who encourages me to push myself. He built me my stamping “retreat” in our basement, so that its free from distraction, and I can leave my things out, without them getting touched. It lets me have the space I need to have creative freedom, and little distraction from the children. After stamping about a year, I signed up as a Stampin’Up! demonstrator. My up-line Paulette Wolfe gave me a website to view. it was called Splitcoast Stampers. Its a website full of people with amazing talent, who share their art work, as well as support each other in many different ways. It was after finding this site that my stamping really started to improve. I would learn new techniques, and was encouraged to think outside the box. The comments people would leave on my work was so encouraging and inspiring. It is this site full of wonderful people that would also later reach out to my family, and become part in supporting making my dream a reality.Alexa’s Story There are moments in a mother’s life that they can remember every detail of. As if it just happened yesterday. Let me share a few moments as Alexa’s mother that I remember vividly.Jan. 12 1999A Positive pregnancy test! From the moment I saw those 2 pink lines, I knew something was very wrong with my baby. I shared these thoughts with anyone who would listen. Being just 21, healthy, and with no family history of disabilities I was reassured my baby was fine.
April 28, 1999
17 weeks gestation-Following a positive Alpha Feta Protein test (AFP test) I was given a Level 2 ultrasound. It was that day that my fears were confirmed, as I learned the baby girl I was carrying had Down Syndrome. She had 10 out of 11 markers that are found on a ultrasound for a child with DS. They also saw a large amount of fluid surrounding her brain. I was told she would most likely be stillborn, and more than likely would not make it another 3 weeks gestation.
The facilities physician recommended I have a medical miscarriage AKA abortion. As it was put by him “Lauren, you are so young. You should not burden yourself with the life long commitment that comes with a person born with DS. You have a long time to be able to go on and have a perfect, healthy baby. Don’t ruin your life.”
I was sick over the reaction to the diagnoses of my little girl. Seemingly more concerned with terminating in his opinion a “imperfect” person, not even considering the fact the his idea of perfect and mine were totally different. This was MY FLESH, she was perfect to me! As a mother you love your children unconditionally, as I already loved this little person I was carrying, but never even met yet. I felt an unbelievable desire to protect her from the world, and was determined to give her the best life possible. She would be special, not like everyone else. She would see the world through eyes that we should all see through.
Sept. 29, 1999 1:58pm I welcomed Alexa Anne Kauppila into the world! Weighed in at 9lbs, and was 20 inches long. Full head of dark hair, and blue eyes. When they placed her on my chest she was screaming. I touched her face, as I cried tears of joy. I spoke my first words to her saying “Oh Alexa! You’re finally here, and your ok” She stopped crying, and turned her head. She looked right into my eyes and held my finger. I will never forget that moment. They then quickly took her away.
5:30pm
It is determined Alexa has a life threatening heart condition. She had 2 large holes in her heart. They stabilized her, then med flighted her to Boston Children’s Hospital.
I discharged myself 5 hours after giving birth to go and be with my daughter. Hours after arriving at Boston Children’s hospital I met the cardiologist caring for Alexa. I am told she will need open heart surgery to repair the holes in her heart. I was in shock. This was an unexpected complication, although common in children with Down Syndrome. Not only was I a first time mother, but one to a child with special needs, that was also compounded by a serious medical condition. I was overwhelmed, and scared. I would gladly have given my own life, had it meant Alexa wouldn’t have to go thru anything.
Oct. 22, 1999
Alexa has open heart surgery. One of the scariest things I think I could ever experience. She did very well, and came home 5 days later.
Over the next 6 years Alexa would grow into a strong, beautiful, happy, smart and loving child. She often exceeded my high expectations. Everyday was a gift, and each milestone reached was cherished. She brought me happiness everyday. Looking at her I was never able to see the where anyone would consider her presence “burdensome”. She was the reason I got up everyday. Her smile gave me life.
October 2005
Shortly after Alexa’s 6th birthday, she began to complain of pain in her right knee. I took her to see an orthopedist who did x-rays as well as an exam. No diagnoses was made. I kept asking what it could be, cause she doesn’t ever complain. I was told to bring her in 3 months from then, if the complaints continued, but otherwise not to worry. My instincts knew this was something bad. Just as I knew my baby had something wrong.
Since Oct. Alexa continued to complain about her knee. She missed allot of school cause she was very lethargic, and would run random low grade fevers. I assumed it was just a virus from all the bugs going around in Kindergarten.
Feb. 2 2006
Dinner time. Alexa and her brother are helping me bake bread. Her brother got agitated, cause Alexa was taking up too much room. He pushed Alexa, and she fell to the floor. Alexa could not get up, she just wailed in pain.
Alexa was taken to her pediatrician where we would then over the next 5 days have a series or ultrasound’s to rule out internal injury, x-rays to detect any broken or fractured bones and antibiotics to treat a bout of strep throat. It was even thought she may just have the flu. I kept telling them that the knee pain over the last few months had to be related. I kept asking for blood to be drawn. Finally on the 5th day at the doctors, and Alexa still unable to walk since the pushing incident they drew a whole variety of labs.
Hours later comes the phone call that will change our lives forever.
Feb. 06, 2006
The phone rang, and when I answered I was surprised to hear Alexa’s pediatrician on the other end. I did not expect to hear from him till tomorrow. He quickly asked me if I could go “somewhere quite, and sit down”. He could hear my children singing Ring Around The Rosie in the background. I was a bit startled by the start of his conversation, and quickly asked “Why?”. He said he’d gotten an urgent phone call from the lab about the results of Alexa’s blood work, and the news he had for me was not good. He pleaded again “Please, I really need you to go somewhere quite and sit. I need you to hear what I have to say, and be able to give me your full attention” I ran into my bedroom, closed and locked the door, then sat down on my bed.
“They found leukocytes in Alexa’s blood. Being a nurse for several years I knew exactly what this meant. I felt like the blood was draining from my body, and I began to shake uncontrollably. I felt faint, as my body was overcome with fear, and anguish. A sob welled up in my throat, as I began to scream into the phone, like you would a bad dream. All I could yell was “Cancer! Oh my god! Are you saying that you think Alexa has Cancer?!” He went on to console me and give me more information but his words fell on deaf ears. I was numb. I had all I could do to open the door and walk into the kitchen. My two children dancing a ring around Alexa who was sitting in the middle of their chanting the same playful song, over and over. I handed the phone to my husband without a word, as I sank to the floor of our kitchen and cried. Our children stopped and watched me not knowing what was about to go on.
We had to immediately pack our bags, and plan for a lengthy stay at the hospital where would would meet an Oncologist in a few hours.
Feb 07, 2006
After a series of more tests which included a spinal tap, and a bone marrow aspiration Alexa was diagnosed with Pre B Cell Lymphoblastic Leukemia. A Cancer of the blood commonly diagnosed in people with Down Syndrome.
This is the start of a 2 1/2 year treatment.
This is Alexa a few months into her Chemo.
Alexa’s prognoses is good. She is currently in remission, and while we have had many long stays at the hospital she has done very well through it all. Everyone had reached out to us. It was so heartwarming to see that perfect strangers could be so caring towards a child they never even met!
I turned to stamping to help me cope with all the stress I was feeling. The people on Splitcoast Stampers were also very supportive. Many sent cards, and care packages sharing their stories and well wishes. Many added us to prayer chains at their Churches, and would often ask for updates through a thread started for Alexa or by emails. It was truly amazing.
Since Alexa’s diagnoises I felt called to make a difference. God has a plan for everyone I believe. I just wasn’t sure what I could do.
One night after posting some of my creations on Splitcoast a stamper named Mindy Hollingshead sent me a PM about my work.I was curious about the photo that was used for her avatar. It was a bald little boy who looked much like my now bald Alexa.
We pm’d each-other back and forth, and she informed me she and her friend Stephanie Blaschke had started a up and coming non-profit organization called Turtle Girl Designs, in honor of Stephanies daughter Danni who lost her fight with Lymphoma. The organization makes hand stamped items to sell at bazaars and craft fairs. The money raised from the sale of these items is donated to the Pediatric Leukemia and Lymphoma Society for research. Each item made represents a special child. Their photo and biography are attached to the items created for them. Each child is represented by a stamp, and color scheme. She asked if I would lie them to create a line to represent Alexa. All they needed was a photo with her story, and for her to pick a stamp that represents her personality, and favorite colors. I could also design items for her line as well. I felt I found a great way to help, and was so excited.
All I had to do was have Alexa pick a stamp set to represent her. I asked her if she could have her very own stamp set what would it be? Her reply was ” I want it to be Groovy Girls, princesses and butterflies” . Alexa has just about every Groovy Girl doll that Manhattan toys has made. She has collected them since she was 1 1/2 years old. My thought to her response was “Oh great, how can I find a set like that?!”
As I tried to think of what company may sell such a set I remembered a particular stamp artist with her own company. After viewing a card she posted on Splitcoast I had ordered some sets she designed, and loved her whimsical style. Her name is Melissa Bastow of Missy B Designs. I sent her a email to ask if she would be willing to design a set for Alexa. I wrote Melissa about her story, and that I wanted this set for Alexa so it could be used to create items in her honor for Turtle Girl Designs. I gave her some background information and was wondering what it would cost me to do so.
Within a few hours Melissa emailed me that she would love to help me out, as Alexa’s story touched her. She followed the email up with a phone call to me where we discussed Alexa’s ideal set, and how she would go about making it.
Melissa in turn generously offered to create the set, and sell it on her website. All the proceeds after the initial costs to create it were paid, would then go to Turtle Girl Designs for Pediatric Cancer research!
I was extatic when I saw her deigns for Alexa’s set. They were better than I could have imagined. Alexa had so much fun viewing the images. Melissa also thought to include Alexa’s own signature in the set.
Once the set was ready for sale, she emailed me. I posted a thread about my excitement on Splitcoast. The response was overwhelming! I was contacted by one of the sites Moderators Jenn Balcer, to tell me that the founder of the site Daven and Tracey wanted to run a banner ad for the set Free of charge to help promote the sale of it.
I am so amazed at the people, most of whom I never met, have taken part in helping me turn my love of stamping into helping raise money for a cure!
Alexa has since received many cards from people made using her set. So many have taken the time by sending her cards and truly brightening her days.
When you buy Alexa’s set, you aren’t just stamping another item, you are stampin for a cure!
I want to thank The Rubber Stamper for allowing me to share Alexa’s story, and her stamp set.
I would also like to thank Melissa Bastow of Missy B Designs for so generously creating this set for Alexa, and donating all the proceeds to this cause.
I would also like to thank Mindy Hollingshead, and Stephanie Blaschke for turning their grief from the loss of a child into helping raise money for research so that some day other families won’t have to feel the same pain. As well as helping me find a way to be part of using what I love to help find a cure.
I would also like to thank everyone at Splitcoast Stampers for their caring and support, as well as all the wonderful friendships I have developed through stamping. They have contributed to making this dream a reality, and have help Alexa get through many tough days by sending their beautiful cards, and well wishes.
To find out more about Turtle Girl Designs visit turtlegirldesigns.blogspot.com
Samples with her set-
You can purchase Alexa’s stamp set by logging onto www.missybdesigns.com for just $12.00 plus S/H. You receive a sheet of high quality vulcanized rubber, which enables you to choose how you want to mount it. You can purchase cling mount, and acrylic blocks from Melissa’s site as well, should you decide to use the unmounted system.
To join the wonderful group of people at Splitcoast go to www.splitcoaststampers.com
UPDATE! January 2008
We are almost 2 years into treatment. Only MONTHS left of Chemo.
It has flown by fast.
Alexa has been so much stronger, and doing so well. I am SO proud of her. She is such a fighter.
She is reading at grade level, and LOVES being back at school. Except for Math! For missing so much school ,she remains like a sponge, and soaks it all in.
She rises above all the “labels” they put on people with Down Syndrome. I am PROUD.
She has a great class, full of amazing kids, who are very good friends to her. Thank goodness for other good parents.
Alexa has taught me so much on this journey. I truly think she is the strongest, and bravest person I know.
I am so blessed that God chose me to be her mother. Through ALL the up’s and down’s of life. She is my light.
She is my reason for being, and has inspired me in ways that go beyond words.
Here is a recent photo of her at her 8th Birthday Party! It was a Princess Costume Party!
How sweet does she look. Hair is slowly grwing in. If no hair means having no Cancer, then I am thankful.
I hope our story helps you in some way. Be it making you thankful for what you have, or seeing that there is an end to a difficult road, where the struggles along your journey pay off, in many ways.
Alexa has taught me to view the world in a different way, and for that I am eternally greatful.
Thanks for reading 
Lauren-
Lauren,
Alexa’s story is simply beautiful. What a wonderful gift you received when you had her. You are a courageous person, and I thank you for sharing Alexa’s story - and yours. You have inspired me tonight.
Kimberly
What a beautiful story. There is nothing like the love of a mother and child. Thank you for sharing and I wish you and your family the best. My prayers will be going your way.
Charlene
I get all teary every time I read this Lauren…I hope you don’t mind I linked her story to my e-mail…
Big hugs to you all!!!!
Wow, what an incredible story. You must be very strong and sometimes tired of being such. I am so grateful there are moms like you. I will be saying some extra prayers tonight. What a sweet spirit Alexa must have.
OK, so I am in tears now. What a beautiful Daughter you have! I too am a Mother of a Daughter with DS. My little Maggie turned 5 in Feb. Although she is for the most part very healthy, she has been having bouts with Alopecia (hair loss) and with her Thyroid. I am so greatful to have her in my Life and to be her Mother as I am sure you feel the same about your Alexa.
May God bless you and your Family!
Julie
What a beautiful story. You are certainly a strong woman and an inspiration to all. Being in your shoes, I would have done the same thing. As a mother myself, we don’t just start loving our children when they are born. That love begins the moment we know we are carrying a life and continues throughout our lives. Your daughter Alexa is beautiful and I pray for her continued good health. Thanks for sharing her story.
Wow, what an amazing story!! I was totally drawn into your story of how you became a stamper by receiving a gift certificate to you LSS. I was totally “into” all of the cards you’ve created, I’ve spent a couple of hours looking through your gallery!!
I thought what a creative gal and totally got what you said about not really being creative, and that’s why you love stamping because it let you open your creative side…I totally feel the same way!! I also think it’s relaxing, once I’m in the zone…..everyone that I know that does NOT stamp just doesn’t get it!!
Then I found your story about Alexa…..I cried…..I continued to read on and on and realized what a Strong woman you are, and how your strong your personality shines through your “creations”
I stoped crying, because Alexa is your creation too……So I’m sure that your stregths shine in her as well!! She is soooo Beautiful and Happy, she looks like a fighter and I believe she’ll beat it
I’m glad you’ve shared your story with us, thank you! Please keep us posted!!
May God Watch over Alexa, You and Your Family and keep you in His loving care always!
Sincerely,
Michelle :O)
PS….just as soon as I get over my last SU order and I get some more Stampin Cash I will be getting Alexa’s stamp. I have a son that’s 6 1/2 I volunteer a lot in his class room…..I don’t think we can have anymore children….so I cherish every moment with him…..We love to make things for the teachers and I especially like to make stuff for the girls….this would be a perfect set!!! Thanks again!!
Hey, I just saw your website and read your story. I was so tiuched. I enjoyed reading about you and your family. Stamping often works as therpy for me. I bought a set of Alexa’s stamps from Missy B designs. I love them. May I link your site to my blog? I don’t have many visitors but they will keep you in their prayers!!
Jeni Bond
Lauren,
Thank you for sharing Yours and Alexa’s story. I was truly touched and my heart goes out to you and your family. You are a very brave and courageous woman. I applaud you for decided to keep your baby even after so many people told you to terminate the pregnancy. A mothers love for her child truly starts the moment she finds out she is pregnant. I my self am a new mom and I wouldn’t trade it for anything in the world. So stay strong and I pray Alexa continues to grow into the beautiful, healthy little girl that God has blessed you with!
Andrea
I’ve just sat here and read your story
with tears
I truly believe you are an incredible individual with strength, courage and a heart full of love
thank you for sharing
I have spent much time at the Hospital for Sick Children here in Ontario with our daughter but for much less of reasons and your story has truly touched my heart
I love your site
read your blog notes
your creativity is amazing
and your drive is fantastic
keep up the incredible work
hugs
Lisa
Lauren,
As I sit here and read your story with tears streaming down my cheeks, I can truly say that I’ve been there. In June of 1999 I too had a positive AFP test, a level 2 ultrasound and an amnio which determined the child I was carring also had DS. We were told to terminate the pregnancy (that we had up to 24 weeks to make that decision), that this was going to be a hard, long road. We were told that this was just a “mistake” that sometimes happens, that we could always try again. Termination was not an option for my husband and I, God doesn’t make mistakes! I was outraged that in this day and age women are being told this, just because it’s not going to be easy!! Raising children isn’t easy, disability or not!
On October 23, 1999, the day after Alex’s heart surgery, I gave birth to our third son, Nathan Vaughn Davis. While he might not have been perfect in the worlds eyes, he was perfect in ours. The next few weeks were filled with ups and downs. After 2 weeks we discovered that he too had a heart defect which required open heart surgery. It was such a helpless feeling, but we knew that God was in control.
Nathan will be 8 years old this October. Of course there are challenges and sometimes it’s difficult to deal with a strong willed child with disabilities, but I have to say that the love and joy we receive from having him in our lives far out-weigh those hard times.
Alexa seems like a strong and courageous little girl and I pray that she will overcome this hurdle. I think it’s great what you are doing with the stamp set and by telling your story. You are an inspiration! May God bless you, your husband and all of your children.
Hugs to you,
Amy Davis
Hi Lauren,
While I’ve followed your story on SCS, I never knew the FULL story of your pregnancy, labor, heart surgery and news of Alexa’s cancer. You are truly, truly an amazing mom and such a strong person! You are such an inspiration to me personally as a mom and as a stamper. I hope you, Alexa and your family are having a healthy and relaxing summer!
Love,Catherine
I knew a bit about your story, through entries and posts on SCS, but tonight I read, for the first time, about this journey that God has chosen you to follow. Plenty of tears were shed at my keyboard this evening, and I want you to know just how ‘in awe’ I am of you–and not just for the beautiful creations you share with us! Strength–that word crossed my mind more times that I can count as I read what you have shared with us. Only another Mother can understand that feeling that goes to the core of your being–that you would do anything–absolutely anything, to spare your child from hurt or heartache or pain. You have such a wonderful heart—it shines through so brightly in the story of Alexa’s life… and there is no doubt in my mind that God chose you to be Alexa’s mother because of all of the wonderful qualities that you show-and have shown- every single day that has passed since you first saw that positive pregnancy test. You are wise beyond your years. I think it is wonderful that you found a way to ‘re-charge’ and do something just for you in the midst of these trials in your life–stamping is a wonderful way to give a gift to yourself while also creating a gift for someone else. The stamping community includes some of the most wonderful people I’ve known, and it seems that these special relationships have been a blessing to you as well. It’s nice to see just how many different ways stamping and creating has blessed your life. God’s best blessings to you and Alexa, and the rest of your family…may you continue to find joy in every minute of every day.
Hi Lauren,
I have seen Alexa’s pic many time on SCS and often thought that she looked just like a little girl I work with at school. I thought, maybe you were her Aunt or something and that is why you had her pic. But no, this is your special Alexa and we have the student I work with, Jayden. Yes, she also has DS and leukemia. When we left for the summer Jayden hair was beginning to grow back in. She is doing well and am glad to hear that Alexa is also.
You are a very special mom and very strong to have gone through so much already. I always say God picks very special people to take care of his “special” children. You can just tell in your story the love that you have for her & your children. You husband is special to to let you have “your” time.
I”m glad I came across your blog tonight. Good luck with everything!!! Your work is terrific!!!
Norma
Oh my….I’m speechless & crying.
I will definitely be purchasing a stamp set.
My heart goes out to you and your family.
Lauren~
Your story - the story of Alexa - is one of great love and beauty. Surely, you were given Alexa because you were the perfect mother for her.
I will buy her stamp set, even though I have two boys (they will have to learn to love princesses and butterflies, LOL)
My heartfelt wishes,
Nonda
Lauren,
I was so touched by your story! My prayers &hugs to you, Alexa and your family. She is so blessed with a wonderful mother, and thank you for listening to all those people who wanted something different for you. May god continue to bless you. Chris
Lauren,
I’m incredibly touched by your story and amazing spirit. As a new mom, I am buoyed by your ability to overcome life’s challenges and count your blessings every step of the way.
Thanks for being such a guiding force for those around you.
More than happy to purchase Alexa’s stamp set!
Best wishes,
Laura
Lauren,
What an amazing story. You are such a strong woman, and an inspiration. I am in awe of your ability to keep your positive outlook in the face of adversity. Amazing.
My family has been hit with Cancer far too many times. I will be purchasing Alexa’s stamp set in my continuing effort to help the fight against Cancer.
I am so touched by your story, and I am in awe of your strength.
Take care,
Cate
Just found this story, you are special to a special daugther. Keep the faith. will check out stamp set.Thanks for sharing.
Lauren, oh my, I’m in tears right now as many others had been when they read your story. I am so happy I found this story on your sidebar.
I hope that your daughter continues with good health into a beautiful young woman. I have never known a child with cancer, only older family members. I can only imagine the difficulty of everything you went through these past few years.
I’d love to purchase the stamp set. I will have to see whether I can get it to Canada. Thanks for sharing your story….
Hugs
Dawn Easton
Lauren, Oh my goodnes…. This was the most touching story and I can’t believe how strong you and Alexia are. My prayers and hugs go out to your family! You have a brave little girl on your hands, she must get that from her Mother! Thank you for sharing this story with us. I will check out the site and see Alexia stamp set. Stacy
Blessings. All I can think after reading about your loving family is blessings. Those you have, those you share and the way you continue to touch others. May all of your days be blessed!
My set just arrived in the mail and I haven’t had time to mount it but I can’t wait to get busy with it. This was an amazing story to read.
Everything for Kids…
I couldn’t understand some parts of this article, but it sounds interesting…
What a small world! The Alexa stamp was probably the first stamp I ever saw with Missy B and was hooked. I briefly knew the story, but never really was able to put a face (and what an adorable face it is!) with the story or set - and yesterday I was on another blog where you were mentioned and subscribed to your blog. I recently hosted a ATC with Missy B yahoo group and I would say that the majority of the ATC’s I rec’vd during the swap had been stamped with the Alexa set. Just thought you would like to know. I had ATC’s coming from California to New Jersey. Talk about sharin’ the love! Always the best! Just a side note about me - I am the ED for a non-profit agency in TN that cares for adults who are MR/DD. So your Alexa is close to my heart too!
hi…
great post…
What a story. You and your family are very strong. As a 10 year old, I had cancer, and the prognosis wasn’t good. It really wasn’t good. But I was a fighter and with the help of the doctors and god, I am a healthy mother of two! Please keep everyone updated. We are all thinking of you.
I loved reading Alexa story.
When I read about your Disney trip I had no idea she had downs.
Our daughter had a heart defect also, it was repaired when she was 4. Thankfully we have been spared leukemia. She is 19 now, currently away at Special Olympics. (a break for me.)
Please let me know if there is a any Disney advise you may have for me.
Hello, I happened upon your website today from a link on SUDSOL and read the story about your beautiful daughter.
For years I have truly believed with all my heart that children with disabilities are special angels given to special parents from God knowing that the child will be loved and their lives enhanced by the extra gifts and challenges this child will bring. You truly have chosen to see the gifts and the love surrounding your girl is incredible as I am sure so is the love she gives back. I don’t normally leave responses to stories but I just wanted to reach out from Canada and tell you how happy your story has made me and how it has touched my life.
God bless you and your beautiful family, Andrea
May God continue to bless your family. Alexa is a very lucky girl. I do pray that you don’t have to deal with anymore cancer once her chemo is done. You are very inspirational and I hope I continue to remember how blessed I am whenever I start to think negatively. Our challenges pale into insignificance.
Love the picture of Alexa in her princess costume! She looks the perfect princess.
Tanya
Lauren,
What a story. Alexa is a beautiful girl. I hope the future brings you much blessings, happiness, and good health for Alexa and the family. You are such a strong individual and I think it’s wonderful that you share this story with others.
Much Love,
Laura Jean
Oh my goodness, what a story you have to tell! Thank you for your encouragement. You have really been through a lot and are using your story to help others. What a GIFT. I will remember this story forever. THANK YOU for sharing from your heart. My prayers go out to your family and precious little Alexa! God bless,
~Lorri
What a tremendous story! I am wiping away tears as I write this, in awe of your strength (and your husbands too I have to say!). I am not a mother to know how you are feeling, but as a full time paramedic, I am faced everyday with other peoples health challenges, and so I can relate a little. I pop into your blog every so often, and am inspired by your work, but I am really glad to have read your story. I will subscribe to your blog now, so that I don’t miss any of your gorgeaous projects, and to keep updated on Alexa!
Best wishes, and off to Missy B!
Diane Cooper
What a beautiful story that is still unfolding. I pray it unfolds until Alex is very old and you will leave to see all of her dreams come true.
The thing is when I read her story, I couldn’t help but be touched by the birthday of Alexa. She was born just one day before my own son, who sadly was stillborn on September 30, 1999. His name was Tanner Jason, and we made it all the way to the end of our 9 month journey into parenthood. I will never forget that day as it was the saddest one of my life.
I am glad that only the day before, because of your choices, little Alexa DID make it into the world.
I love to know that Alexa got to live! Despite her odds! Despite the cruel words of a doctor who knows not the value of human life…ALL human life.
She is a shining star and inspiration to all of us. God bless her always.
Thanks for sharing this very personal journey with all of us.
Alexa is a truly wonderful gift to all of us. Thank you for sharing this beautiful story and your wonderful creations. God Bless you all.
Lauren,
What an amazing story! I just so happen to be home today because we were snowed/iced in today! Being a full time working mom of two beautiful children, it is always a treat to be able to stay at home all day with them once in a while!
However, reading your story makes me realize again, that days like this are OK and it is not that big of a deal when they argue or get sassy once in a while and most important: To be greatful for what you have! It is a blessing to have children and that they really do bring joy to your life no matter what happens in the day! As I watch my son play with his dinosaurs while typing this e-mail I am thanking God that he is in my life! I give you a HUGE hug for being a wonderful mom and having the strength to get through your tough days! I used to watch a boy with ds when I was in high school and he was the sweetest thing in the world! No matter what type of day I was having he always brought happiness to me. I know that Alexa does the same for you! My thoughts and prayers will be with you and your family! Take care and thanks again for sharing your story! I will be visiting Missyb’s website to purchase the stamp set in honor of Alexa and all of the other sweet children with ds. Hugs!
Today was a little challenging as my two would not get a long…2 yr old girl and 4 yr old boy…imagine that!
Alexa is just an amazing little girl and you deserve so much credit. You are a wonderful soul. I pray that Alexa stays in remission. I wish you all the best and you’ll all be in my thoughts and prayers.
I’m going to go hug my kids now!
Thanks,
Steph Reimer
your story is truly an inspiration…I pray that Alexa continues on the road to good health and that you and your family have the opportunity to cherish and enjoy each other for many many years to come…I can see how Alexa brings so much joy to your life and you should know how lucky she is to have a mother like you…Even though I don’t know you personally, I can tell that you are a woman of amazing character and remarkable strength. I think God brought the two of you together because you are a gift to each other.
All the best and big hugs to you both!
Val
I have frequently looked at your amazing talents with all the papercrafting you do, but just today read Alexa’s story. In many ways we are the same, I also got pregnant at the age of 21 and not only found out at my first ultrasound that I was having twin boys, but that one had hydrocephalus as well. Being a first time mother it was devastating. He is now 7 and has lots of little issues, G-tube fed, non verbal, developmentally delayed. But I have to say he is also the light of my life and my reason for living. I call him my natural anti depression medicine. He makes me smile and laugh everyday–although as you have experienced, has brought a lot of heartache along with him, he has had over 22 surgeries. But I also feel he has brought twice the joy. I hate when people say I am so strong and he is so lucky to have me as his mother, I do not feel that way I feel so blessed to be HIS MOM! Good luck with finishing up the chemo, I hope that all goes well with her and your family.
Mandy Kirk
I have been visiting your blog for months and I finally read Alexa’s story today. I knew a bit about it and I knew I was going to cry so I think I put it off deliberately. I don’t know what I could say that hasn’t already been said above. Your story brings hope, encouragement, joy, sadness, and anger. I wish I could just hug you and Alexa right now. God gave you each other (all of your family) and you are all truly blessed.
What a wonderfully heartwarming and heartbreaking story all at the same time! I can’t imagine what your family has been through! One of my son’s friends has been fighting leukemia for a year now and it has been sometimes heartbreaking and sometimes joyous following his story! He is in remission now and it sounds like Alexa is well on her way too! What a beautiful, special child!! I’m off to check out her stamp set! Thanks for sharing your story.
I am always amazed about how we mothers of children with Down Syndrome are like magnets to each other, as I am surfing at 1 am from Georgetown, TX. My Samuel is 17 yoa, and we are blessed with no health issues to this day. No lives touched by our children are ever the same, right?
I will pray for your family’s full recovery and Alexa’s bounce back into school and play. She can compete in Special Olympics which will show her winning spirit, after she’s back full strength. Her princess photo is beautiful.
I work with adults with DS and I can’t imagine that anyone would think that their lives are any less worthy. I have worked in a sheltered work shop for 17 years and am retiring at the end of the month and will miss my friends who have become my family over the years. The love you share will conquer all the odds. Bless you and your family and you courageous little princess. Ann
Thank-you for sharing your daughters story with us..I was very touched and inspired by it..I wish only beautiful things for you, Alexa and your Family..My thoughts and prayers are with you.. Iam going to look up the turtle stamp. Paola
OMGosh…I am in tears. What an amazing mother you are and what a courageous and special little girl you have. God picked you to be together.
Thank you for sharing your heartfelt story. I need that stamp set….
Tears are running down my face as I type this. What a beautiful story…thanks you for sharing it with us. Your family is so courageous and I am in awe when complete strangers reach out to help someone in need. It always touches my heart! My prayers will be added to those going up on Alexa’s behalf…what a gorgeous little girl!
Wow!!! Your story is so touching and close to home!!! Your daughter is a blessing beyond belief to so many people! What you and her have done together to make it “through” gives such inspiraition to those of us struggling now! Thank you for sharing so much of yourself and your family!!! It really does make a difference!
We will be keeping you and your family in our prayers!!!
Dear Lauren,
Thank you for sharing your beautiful story. I was admiring you adorable baby cards off of one of my friends Nancy Morgan’s sight. I began looking at your sight off of a link she was wonderful enough to share. Your story has made me cry tears of sadness, and tears of joy. I am so thankful to have been able to read it. I have two children of my own, and I have to say cancer is one of my biggest fears. I am in awe of how you have been able to embrace each obsticle you have been faced with. Thank you for sharing your story. You are an inspiration to all mothers. May God continue to bless your family with health and happiness. I pray that Alexa will continue to overcome this battle. You have endured so much. God Bless you and your family.
Dear Lauren,
I found your website quite by accident. Over the past years (through SCS) I have followed Alexa’s story on various websites and today was so happy to see that your little princess is now 8 years old and still her smiling self.
You are such a courageous Mom! Children are such gifts to parents. They bring much happiness and love to a family.
May God continue to shower blessing of health and happiness to you and your family.
Dear Lauren:
You are very strong and courageous. Having survived cancer myself, I cannot
begin to imagine what it would be like to watch your child go through it. Your
love and faith have obviously helped you. You are blessed with Alexa and she
with you. Wishing you and your family the very best as you near the end of
treatment and move into healing!
Lauren,
Thank you for sharing your families story. I was admiring your baby card on Splitcoast and came here for the directions but found so much more. I am a sahm of 3 myself I am sitting here in tears. Tears of sadness and tears of joy as I read all that you and Alexa have gone through together.
I pray that Alexa will continue to heal and that God will continue to bless you. Thank you for sharing your story it was a blessing to read.
Thank you for sharing your story. I admire your courage and your strength. I pray for God to continue to bless you and your family.
sandy
You are a very strongh lady. It takes much courage to share all this information.
I had a similar story with my first son, and I wasn’t able to talk about the details until recently. My son also had open heart surgery when he was 4 days old. He was diagnosed with Leukemia almost two years later. His last chemotherapy was in 2,002, and by God’s Grace and Mercy, he is doing well.
I pray that the resurrected power of Jesus continues to work amazing miracles of healings in your beautiful Alexa.
Your testimony gives so much hope, thank you.
God bless you!
It’s stories like yours that make me realize that no matter what I am going through, someone else is going through something much worse. I delivered my son 7 weeks early on Feb. 26th and he had to stay in the NICU for 15 days. I didn’t think I was going to make it for the 15 days. I can not imagine…nor do I want to ever imagine what you and Alexa are going through. I will pray for you all. Alexa is just absolutely beautiful and so is your story…and your soul for sharing this.
May God bless your family!
Karie
God bless you and your family! You are what a mother should be! Someone who loves her children and is there for them no matter what! kEEP HUGGING AND KISSING HER EVERYDAY! You are a very special mom! Thank you for sharing your story!!
I was surfing the net looking at cards when I came across your story. I often tell friends that one of the best books I have ever read is The Memory Keepers Daughter. For weeks after reading the book, I kept reflecting on the message it held for me and I have been giving it as gifts to my friends. It is so tragic that we assign worth to an individual by their abilities, wealth, or beauty. For such a young mother you showed tremendous wisdom and courage and now you are reaping the rewards with a child that has blessed your life beyond measure.
I plan to see if your stamp set is still available and use it with a special awareness of a lovely young lady that has fought a tremendous battle with cancer and is a winner. You can be proud to have her as a daughter…she has your same courage.
Thank you for sharing your story.
This wonderful book, “Memory Keeper’s Daughter” is a new TV movie, on 4-12-08, Lifetime Channel. Everybody watch.
I’m writing this through tears after reading your beautiful, heartwarming and courageous story about Alexa. We never know how strong we are until we’re put to the test. Your love and devotion to your daughter is truly inspiring. May God’s love shine down on all of you.
I have been a teacher of children with special needs for over 20 years. Your Alexa is an inspiration to any child on this planet! She is beautiful and talented. I have a poem that I share with my parents, about a child he needs to give a home to…he searches and searches until he finds just the right one. This child will need lots of extra love and caring, in order to bloom. Alexa is lucky to have a wonderful family.
The reactions you were treated with upon finding out that Alexa has Downes is not uncommon, and it was heard much more frequently as early as 30 years ago. When my brother was born, there were no ultrasounds and no technology available. My brother was whisked away from my mom, and the doctor went out to the waiting room and told my dad to put him in an institution and tell my mom that he did not survive….forget that he ever existed. Go on with life, and have more children and forget about him. My dad punched out the doctor! My brother is not as bright as Alexa, he has had a happy life, has a job at a local restaurant where he is very popular and makes good money. He lives in a group home with 4 other men just like him. Eric will always be a mischievous 10 year old, but to me he is my brave, strong older brother. When my parents pass on, the responsibility of taking care of him will fall to me. My boys adore him, and he adores them. It would have been a shame to have abandoned him. And, this did not happen in a small city…or out in the country. We grew up less than an hours drive from Boston, on Cape Cod.
Thank you for cherishing your daughter, and her special gift. God is looking out for her and your family, and she will have a happy life. I had purchased Alexa’s set from Missy when it first came out, and now I have the pleasure to find your blog and “meet” the famous Alexa.
HUGS from a fellow stamper!
Your story put tears in my eyes.Wishing Alexa and all your family all the best .You are an amazing mom.
Oh my goodness Lauren…I recently started subscribing to your blog, and only just now have read about your little Alexa. What a special gift you’ve been given in Alexa, and what a special gift you’ve given all of us by sharing her story with us. What a beautiful treasure she is…a true angel here on earth! Thank you for her story.
You are amazing! Thank you for sharing yor story, you are one in a million…God bless you and your family. Alexa is blessed with a wonderful mom.!!!!
Hugs,
Nancy
Lauren,
I am just now finding this, and am so touched. You are blessed to have Alexa as your daughter. What a very special girl. Off to get the set!
Joan
Binkyman99 on SCS
I’m so glad I wandered onto your blog. Reading about Alexa and her zest for life… made me smile. ( and cry but thats another story!)
Take care of you and yours…… theres a link on my blog to a blog by FeFe who had a story about Holland … have a read…. You too will nod that nod of someone who knows that different is good….. xxx
Wow, What an amazing story. My God bless you both and the family. May we always give thanks for the blessings in life. Thanks for sharing.
Kathy Brown
Gallatin, TN
Thanks for taking the time to share with us all. I have seen the beautiful scrapbook pages on splitcoast and finally found the story that goes with them. Thanks for inspiring us to be better mothers and to take time for us. What a beautiful little princess. Jill in Arizona
Lauren,
Thank you for sharing your story. It touched my heart and I started checking into getting the stamp set that was designed for your daughter.
I tried to look up MissyB’s design stamps so I could buy Alexa’s stamp set. I understand that she’s on bedrest till summer 08 (??) and isn’t taking any orders right now. Would you be so kind as to let me know when I can order the set again?
Best wishes. I love your stuff on SCS and will keep Alexa and your family in my thoughts and prayers.
Take care,
Deana in Indiana
Thank you for sharing your amazing story. I just came across your site yesterday and your creativity really touched me. I had no idea what it all meant and why I found it so emotional until I read this story.
goodluck with your cause and fight for a cure, a bif\g magical cuddle for you and your family , you are a truly beautiful mother to an even more beautiful little angel
You have a story that is meant to be told over and over. It is inspiring, loving, heart wrenching and amazing all in the same regard. Thank you for taking the time to share about your beautiful daughter - the courage of everyone involved is nothing short of amazing!
you, alexa, and your family have truly touched my heart. thank you for your transparency and sharing your story.
You are not only an inspiration to ALL Mothers but a reminder of how GOD puts us on a Journey in life and who are we to question it. Your a wonderful woman of God. Mnay you continue to share you love and passion of life with others. Blessings Always. Thanks for sharing your Talents and your personal Journey.
YOU are such an amazing woman! Thank you for sharing your story, you & your family are such an inspiration!
God is good!
I just read this Lauren. It was the first time I could get through the whole thing.
Thanks again for being such an inspiration and sharing Alexa’s story. WOW
em
This is the first time I have read through” one of these stories”. I see them and turn away from them because they are sooo sad. I am a cancer survivor and know some of the experiences Alexa is going through. It is hard to go through as an adult. I can hardly image it as a child. I felt compelled to read Alexa’s Story and so glad I did. She will be in my heart forever. Thank you for being the responsible mother that you are and keeping your baby. Doctors are often insensitive. I will check back often to keep up with Alexa’s life.
I discovered you through Papertrey. Every day I check to see what you have made, I love your style and endless ideas. Mostly I love the spirit I see through your struggles. Today I decided to take a moment to read Alexa’s story. I am touched and wanted to send you good wishes and say thank you for all you have given. Know you have 1 big fan out here wishing you well
I think you’re the best MOM ever and Alexa has to be the cutest and bravest DS girl I’ve ever seen
I used to work at the local library where a dad always came with his DS son, he was probably, uhmm, maybe 10. I had so much fun with this kid and had the feeling he could see as deeply inside me as I could see him. As if in a different world, but there seemed to be an understanding between us that I never see with other kids, like they have a couple of extra senses to use! ALL my experiences with DS kids have been nothing but amazing and delightful, I would never understand how anybody could suggest not to share their life with them! There is so much we don’t know and so much joy to be had!
I was out of the country when I got pregnant and only got to see the doc when I was 3 months along. After the confirmation that I was preggers (NOBODY believed me then!) I cried my little heart out for joy, everybody else must have thought a different reason as they all assured me there is still time to abort, ugh…… never assume, always know
Your story is amazing and I knew from the moment I clicked onto your site for the first time you were a special woman. I could tell from the way your pieces seem to capture the beautiful spirit you have. I too have tears streaming now from my face after reading your story about Alexa. She is truely special and a brave little girl with the best mommy on earth! I have a brother who is mentally handicapped and does not have DS but has Epilepsy and suffered many grand=mal seizures that caused him to be brain damaged on the side of the brain that does learning. He is now 43 years old. Although he will never be able to read or write he can communicate with others and dress himself and tend to his own personal needs. My mother is also a truely special mom who considers herself honored that God chose her to raise a special son. He doesn’t even know that he is handicapped. Although everyday should be a struggle and challenge for him he charges ahead at life with a fearless attempt. He has overcome and been braver than I could have ever been and attempted more physical feats than I ever would think of. He is an Eagle scout and also competed in the World Games in Alaska for Speed Skating event in Special Olympics. He also competes in Golf and equestrian events as well as many other special olympic sponsored events and sports. He surely has followed his dreams and has lived a very courageous life indeed. My mom has not only been his mom but his coach and has been very involved with scouting. She also finds time to be a mom to her other 5 children and is a grandmother to 14 and great grandma to 5. She said that God only gives special children to special moms that have the energy and wisdom strength and courage to take care of them. I truely believe you are one of those very special moms. I hope you rejoice in every victory and feat that Alexa has and she also never feels challenged in any way. I am amazed at your creativity and marvel at your works but now I know where you get such great inspiration…..it must be from Alexa as I think she is so amazing. Thank you to touching my heart today!
Love to you and your family
Debi Pippin
Inverness Florida
I too have one of God’s angels. Your story is so much like mine. We had tried for so long to have a child. We were so excited to see those two little pink lines. After my first ultra sound my doctor said there maybe a problem. Unlike your doctor mine was very supportive. He told me some more test could be run if I wanted them but unless I was going to terminate there would be no reason for more test. I didn’t tell my family for fear they might try to talk me into something I didn’t want to do. My son was born 6 weeks early. He too was stablized and transfered to Vanderbilt Childrens Hosp in Nashville by the Angel Team. He had a blocked intestine that required immediate surgery. We were also told of his heart condition, one small hole and another large one. He had heart surgery when he was 6 months old. He is now 5 years old and has brought so much joy into our lives. He has touched so many lives and hearts. He has a smile that will melt your heart. He has given me so much more than I give him. He makes me look at the world with different eyes. He has taught me so much, to look at what’s important, to take time to smell the roses. I have tried to come up with ways to raise money and awareness. this is the most wonderful idea I have heard of. You go girl… raise the awareness and inclusion. Our little angels need people like you to spread the word…. Everyone is different, that’s what makes us the same.