The waiting game that is.
So we saw the doctor. I love our pediatrician and her “normal” oncologist. Its weird they aren’t handling this. Im now “cut off” since Cancer is no longer the primary issue. Anyway-
Here is the “plan”
Alexa has to drink 7 oz. of Citrate of Magnesium. We need to clean out her bowels. The purpose of this is HOPEFULLY during the “cleansing” we start to see COLORED poop. It is possible that during her virus, the gut didn’t squeeze enough to activate the gall bladder to work on the poop-leaving a “usually” small portion of poop un-colored. Since she has a bajillion other issues that lead to constipation it is supposedly likely
Another reason for the clean-out-if we DONT see colored poop-its all white we are in a load of CRAP, and I don’t mean just literally!
We will then do a ultra-sound of the gall bladder and liver (another reason for the clean out-makes results easier to see and more accurate). IF there is something unusual after that we have to resort to a CAT SCAN.
Now in the middle of all this if ANY fever results ER here we come.
Oh and BAD abdominal pain. She will have cramping but it has to be pretty bad.
So I have spent the ENTIRE day begging and pleading and bargaining with Alexa to drink the drink. We still have 3oz to go. I think I know where I will be all night. Sitting in the bathroom with Alexa! Because she has bowels f steel!
I have no idea when this will finally hit her.
A little background-Last year in Jan Alexa was FULL top to bottom-Yes, FULL! Puking Poop!
She got 3 enemas (the maximum allowed) and a tube ran through her nose to her belly pumping Go Lytley. She got 2 FULL IV bags full-not a poop squeezed out of her. Finally the NEXT day (they said most adult would be curled up in a ball on the toilet ALL day after 1/2 a bag) she began to poop ALL liquid. They thought they saw a blockage and the poop was passing around it and she was scheduled for surgery the next morning. Prior to the surgery they did another x-ray-she was CLEAR! She held all that liquid (and not one complaint except the tube in her nose) so long that is liquefied ALL her poop.
Anyway-here I am. Waiting for her to finish the drink and praying the cleansing starts SOON. Then I can get some answers.
So its either a fluke-Auto-Immune Hepatitis, or a blocked bile duct in the gall badder-gall stones-or early liver failure.
Prayers said for the fluke.
Im beyond exhausted and I know its stupid but am a little worried we may have to ditch Amber’s field trip. All the kids were so looking forward to it. ME TOO!! They have missed out on so much in the past 2 1/2 years you know. Here we are again, different problem. I know I should not be whining but I am always honest and this is part of my thoughts. I just want everyone to be healthy and go to the stinkin farm like a normal family! What is so wrong with that.
I just want to see brown poop!! I thought she’d be going by now. UGH!
Since the day your child is born we all worry over poop. Geesh.
I have read all the thoughts/prayers and emails and really cannot tell you how much they mean. Im not just saying that. I have really taken some comfort in all of you out there. I know it may sound silly but its so true.
So thank you for being my sounding board.
Ill be back when I know more.
57 Responses for "The the games begin!"
Come on brown poop! Brown poop, brown poop, brown poop!!! Bring it on Alexa!
(((((Lauren))))) I’m keeping all the prayers going your way….I hope that this helps Alexa to clean herself out and they find nothing wrong. It’s okay to whine…it’s normal and considering all you and your family have been through…a trip to the farm is NOT too much to ask. Sending big hugs and good prayers your way!
You can let it all out with us – we are here to be your sounding board. You can whine all you want – we won’t complain. How many of us have been there before? I went thru the same feelings when my husband was dying of cancer. We want our lives to be normal, if at all possible, and just need to let out all of that anger once in a while! I will keep your whole family in my prayers, but will add a cherry on top for you and Alexa. I dearly hope that you see brown poop – and as soon as possible – you both need to get some good sleep!
I never thought I’d say this, but here’s hoping for lots and lots of brown poop for you. You are not whining in the least – just facing challenges that would melt the rest of us.
Come on poop!
God sure blessed you with a tough little angel! It stinks (figuratively and probably soon literally, ha!) that you have to be dealing with this now, but she is such a trooper so that must help some. It sounds like she handles it better than most adults would, I know better than me for sure! Continued prayers for all of you, hopefully you can get some much needed rest soon.
Still sending out prayers for you! I hope you see brown poop soon. 🙂
still have you in my thoughts and prayers that all is well very soon. (((HUGS))) MaryJo
Praying for POOP!! lol!!
Oh Lauren…..my heart is aching for you right now! your little alexa and you have been through enough…you should get a break from health issues. you bet i’ll be praying for your family…especially you and alexa. you have one tough little girl…she has endured what most adults could not handle…i’m sure you are so proud of her! thanks for keeping it real…and please keep us updated. {{{{{HUGS}}}}}
regina
Lauren, I’m praying for all of you and that the brown poop comes sooner than later. {{{{{Hugs}}}}}
Hang in there, Lauren. Alexa is a strong little lady. Hope that you’re not spending all night in the bathroom…hope she gets her “business” started soon! Prayers are definitely on their way. Alexa is so blessed to have such an amazing mom. {{HUGS}}
Don’t worry about your very human thoughts!!! You have been looking forward to the field trip for a long time…I hope you still get to go. Most people would NEVER be able to cope with all you have been faced with…you are a SUPER Mom!!! I hope to goodness you will get a good result with the laxative…please, oh please! I’ll be thinking of you, and continuing the prayers for a good outcome for Alexa. More HUGS to you! HUG HUG HUG …I wish I could do something MORE for you….
Prayers continuing for Alexa and all of your family. Hope thiings get going soon and that you both get some rest.
OHH yes I agree with another post.. Come out.come out,come out where ever you are … OH Love Prayers for alll of this too be soon over.. ((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))!!!!
I would tell you about my ordeal with poop but its too long… (no pun intended! lol) but OH darling please know I am here for you and I am holding your hand all the way from here!!!
I commented on your last post about my son…he did end up with a blocked biliary duct and gall bladder. I just wanted to let you know that if that is the problem…his surgery was really quick and easy and he recovered in less than 72 hours and has been absolutely FINE every since. He has one small scar that has already faded so much. If you have any questions PLEASE email me. I would love to encourage you. Hopefully, she’ll poop away and it will just be the virus, etc.
janetprentice at verizon dot net
Wow! I know how it is when something throws you for a loop when you have a child with special needs that has something go wrong. You feel so alone, I have been into those deep dark depths and they are not fun. I hope the poop starts to flow and that things start looking up for you soon! 🙂
Mandy
Oh gosh Lauren this is not whining! How could you not feel the way you feel in such a situation!? There is nothing worse than having your kids sick. And I do understand your disappointment for the ruined plans…I know how it feels to deprive one kid of something because of the other one not being well. It stinks and it’s unfair.
I hope and pray Alexa will “clear” the problem early tonight so that you can all get some rest and start tomorrow with a different outtake.
((hugs and prayers))
Oh I’m trying to send all good thoughts that I can muster! Poor little thing and poor mom 🙁 There is only one point where you are terribly wrong: you say you should not whine, but you should! Getting THIS out is as important as getting other stuff out. So whine away, we’re all listening and praying for you!! BIGHUGS
Prayers are wtih you and your family. I can’t believe how many prayers to the almighty are going to be for a brown poop! But here we are all your stamping friends praying for poop!
Don’t worry about venting use your blog to sound your frustrations so that you don’t bottle up yourself. You will have prayers all over the world tonight and I am sure a happy out come will be just around the bend.
Keep strong, and take a deep breathe!
Rieca
Lauren – I’m an avid reader, but this is the first time I’ve ever posted. My heart goes out to you and your family. How unbelievably scary, frustrating… to name just a few. Lots of hugs and prayers coming your way. And I hope you get to post better news soon.
Thanks for taking the time to let us know. I was worried and got my whole family worked up too! I hope this has a good ending, so to speak….poor Alexa and you and your whole family. It isn’t fair. (((hugs)))
Lots of thoughts & prayers going Alexa’s way! Good luck! Thanks for keeping us posted & I’m sure it helps you get alot off your mind by blogging to us, we as a community are here for support as well as creativity! Take care of yourself & I hope everything works out well for all of you.
In my daughter’s lift she had 16 years of never ending poop. It was not until she had her colostomy that she was able to have a life outside of the bathroom. I totally feel for you. I am the ultimate poop hater and have never figured out why my life with my daughter surrounded poop for such a long time. “Bring on the brown stuff!!!”
Your family is in my prayers. I’ve never prayed for poop before!! 🙂
In my daughter’s life she had 16 years of never ending poop. It was not until she had her colostomy that she was able to have a life outside of the bathroom. I totally feel for you. I am the ultimate poop hater and have never figured out why my life with my daughter surrounded poop for such a long time. “Bring on the brown stuff!!!”
I have been thinking about you and your family all day. I hope the night is not too exhaustive. You are in our thoughts and prayers.
Oh Lauren! 🙁 Do you ever just want to break down! You just go through so much! I’m praying for a simple fluke!
On a totally different note — I purchased replacement lights from the company you recommended. Come to find out… they don’t fit my lights. One of them broke when I tried to place it in, but I have 1 more that you can have if you’d like. I won’t be able to use it. Just let me know your address if you’d like it.
Lauren you poor thing. I will pray for alexa and brown poop! I can’t imagine how all this has been for you as it is. You are one tough cookie and it’s fine for you to want to go on a family field trip without worries. I bet it’s just a fluke, hang in there I’ll be thinking about you and your family.
Lauren, you are such a trooper, you and of course your beautiful Alexa. Hang in there kiddo. I know this is not easy…considering everything you have gone through. Please let me know if there is anything I can do to help. (((HUGS))) You and your family are in my prayers.
Oh, Lauren…I feel so bad for you & all you & your family have been through. I’m sending lots of hugs & prayers your way. I’m also wondering when there’s been a time when God received so many prayers about…brown poop! So, praying for you, Alexa, a good night’s sleep for you all & a fun field trip after all this. Don’t feel bad about that…it’s normal to just want normal after all you’ve been through! Hang in there. Blessings to you!
You and your family are just so precious. I am saying a prayer for you.
Joey
I have been checking back all day hoping for some updates on Alexa. At least you have some steps to take and a plan to solve this problem. I will pray that this is only a fluke and after the flush out all will be well. You are in my thoughts and prayers.
Hoping for a quick good brown outcome! Continued prayers for you.
Oh, I hope that mag cit helps! It helped my kid. I will continue to pray for… poop!{Can you stamp in the bathroom??} I know its not a joke, just trying to lighten things up. Kris:)
You and your family are in my thoughts and prayers!!!!!!! Stay strong and hopefully things are moving by now!!!!
Amanda
[email protected]
Oh Lauren, this is so scary for you and Alexis. I will pray that things start moving and showing up the right color. Keep us posted!
Big HUGS! Drink the drink, Alexa! 🙂 Praying for colored poop!
Did she drink it? BRIBE her! I totally believe in bribes…you have to follow through.
A quick stop in home to check on you and out the door we go again. I’ll check back later and for sure early a.m.
I hope you get to go on the field trip!!! We are praying for no rain for “field day”…last year it was freezing – no water games, and this year it’s been 70+ for 5 days and tonight it drops 20 and the rain clouds are rolling in. We just want our kids to have happy times!! Nothing wrong with that!!! Especially Alexa!
Hang in there! Hugs!
Wow – did you ever think you would be hoping that your kid had a virus? Warped, huh! Well, you are all in my prayers, and I know that what you are going thru has to be maddening! Ugh! I hope you find out very soon what is going on and she recovers quickly!
Hugs!!!
Lauren I am so hoping that this is all a fluke. My prayers are with you. Stay strong sistah!!
Bless her heart, your poor sweet baby. She is gonna make one incredibly strong and amazing woman. The female version of Lance Armstrong? Tour de France / Triathalon here she comes!! Make sure she knows were all praying for her.
Michelle
Never thought I’d be praying for brown poop — but I am! Hopefully things will work their way out soon and you can all get a good night’s rest!
Hope things went well last night and you’re seeing some results today! We’ll keep praying for a good outcome!
Hopefully by now Alexa has pooped a nice big brown poop for you!!! (Boy, that sounds really bad, but you KWIM!!!). Hope you got some sleep last night and all is better today!!! BIG HUGS for Alexa and you!!!
Thoughts and prayers for your sweet Alexa – Big hugs!
Yall are still in my prayers and I pray the Alexa poops brown today. Susan
Hang in there. It’s just what we mothers do for our kids. I’m praying for brown or at least some color, for you. Anything but that white! I’m still praying.
Oh Lauren many a prayer is being said for your family.
Dear Heavenly Father many people are asking for some movement in the bowl area of this child Alexa so much has been happening in her life Lord. We ask in your name for good results for this family so much has been going on in many areas of the family. Lord please help Lauren thru this and give her the strength and perseverence needed at this time. Amen
Cast your burden on the Lord, And He shall sustain you; He shall never permit the righteous to be moved. Psalm 55:22
Just leave it to Him. He’ll lead you home.
Lynn
I had no idea the gall bladder had that kind of effect. I’ve been told it is an unnecessary organ (I literally JUST had mine removed). I am so intrigued by this. I’m so sorry you’re going through it and my heart just goes out to you. I wish you good luck with everything ….you’re in my thoughts and prayers!
lauren-
you and our family are in my prayer! i am praying for lots of “normal” colored poop for alexa (i never thought that i would say that! 🙂
hang in there gal!
~sarah
Lauren – thanks for keeping us updated…Big hugs to you – I can tell that you are an awesome mom and you only want the best for all of your kids!!! It’s not always easy to please all of them – you can only do what seems right at that time and I bet everyone will understand!!! Hope Alexa is gonna be alright…I’m keeping you all in my prayers and may God bless you with all the strenght and wisdom to see you thru this crazy, unknown times!!!
Hang in there! I am praying for Alexa to start pooping and that it is colored poop!!!
Lauren,
My gosh, I just want you to know something. You don’t know me, but I am with you every step of the way. I mean that truly. I have subscribed to this blog for a while, and read, and watched, and listened. I have been amazed at what you all have endured.
I pray that this is just a flukey thing, and that Alexa is going to be OK. God’s blessings to you all, Lauren! Lots of love….
Do any companies “produce” a poop stamp? Then we could send you and Alexa some cards!
Hang in there!!!
d
Oh my gosh, prayers and big hugs are being sent your way.
I totally feel for you. My son use to hold it in. Finally we took him to the ER, he was filled to the rim. They gave us some medicine to make him go. Four years later he still holds it in. All I have to do is say do you want the medicine. He is off like a shot to the bathroom. My Hubby says it scares the poop right out of him. HA!HA!! My prayers are with you! Hope you see poop soon.
Lisa
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