Oh boy, am I ever bummed.
Alexa had a rough night last night, and her oxygen levels were hovering at 75%. Needless to say we will NOT be coming home today. I should have remembered that the minute you get all psyched to go home something comes up.
I hate being here for so many reasons.
God only knows what else she can pick up here as well.
I just saw the doctors this morning since we arent going home. I just found out we may be stuck here till at least Friday!! The family next door to us is dealing with the new reality that their 3 yo little boy has Cancer. So they are busy with them-understandably
This is old hat for us-I remember sitting where she is today. Looking at the long scary road ahead.
I am thankful we are 1 year and almost 7 months into our 2 1/2 year treatment.
Alexa has overcome many obstacles before, so I remain prayerful, and hopeful for my baby, and hers, and every-other person going through this.
There are alot of kids with Cancer on the floor this week-you can see winter is near. We ALL dread this time of year for just this reason-long scary hospitalizations of unknown consequences.
OK Im off now-Alexa wants to go to the playroom, and Im upset. The later we get home the less I get done for her party, and Im just stressed.
Amber had a heart murmur detected and has a cardiology appointment tomorow for tests, that I wont be able to make, and that is really stressing me out.
OK pity party over.
64 Responses for "The roller coaster of life with Cancer"
Never having had to walk in your shoes, I can’t say I understand, nor do any words come to mind that I think could soothe your pain and sadness. I guess sometimes there just aren’t any words. So, instead, I send compassion, hugs, prayers, and hope to you and your family. God bless.
Lauren,
I will keep you and your family in my thoughts and prayers. You are all more than 1/2 way through. Just keep reaffirming your entire families strength and progress. I check in daily on your progress and send many, many “healthy” thoughts your way!!!!
Oh, Lauren..I was so hoping to come here and find better news today. I am still in prayer for Alexa. I am also in prayer for you and Amber. I wish I lived closer so I could come and join you for a time….but know that you guys are in my thougths and prayers.
You were actually on my mind this morning and then I read Keva’s post and came to get the update. So sorry that you’re stuck at the hospital. Will pray for you and your family.
You guys are in my prayers, Lauren!
Lauren:
Alexa is in our thoughts and prayers. She’s a strong little girl and she’ll get through this and her Momma is even stronger so we know that you will come through just fine as well. As for your daughter with the heart murmur, I just wanted to ease your mind a bit coming from a Momma who’s had 2 with a heart murmur and at that age, they say it is pretty common and they grow out of it. Both of mine were this way, but all in all, it is scary to think about. I hope that all will be fine with it!
Lauren, I’m so sorry to hear Alexa isn’t feeling better yet. (((HUGS))) and I’ll be thinking of you all.
I was hoping to come and find better news! So sorry! We’re still praying for you and your family. Do you ever think God thinks we’re stronger than we actually are?LOL! Seriously though I have felt that way many times. Sending (((((HUGS))))) your way!
((Hugs)) I can’t possibly imagine what you must be going thru Lauren, but know this, you are an incredible person – Alexa is one lucky little girl to have you for her mom. You have all these people near and far praying for your entire family, including little ole’ me. I do hope that the stress burden eases up some for you. “What He brings us to – He brings us through.”
Hey, girl. I just want to say that you and your family are in my prayers. I know this is a hard time, but remember that God is bigger than any of the problems we face. Take comfort in that fact and trust Him! 🙂
Oh honey, you are not having a pitty party, you are truly concerned about daughters. That is so understandable. Vent and stress all you want here. We are here to lend a shoulder for you. I think of you and your family each day and pray for your health and happiness. Stay strong…big hugs!
Hey there, hugs & prayrers for both your daughters today! Lauren, I keep & hold your family in my prayers.
On a side note…congrats on making the craft paper flocked flower card. Beautiful. God has given you this talent to help you with stress in your life, for a few moments to try not to think about all the stress in your life. Hugs!
Dang! Sorry you all aren’t coming home today! Let me know if you or Jay need anything – I’ll talk to you later.
So sorry that Alexa isn’t doing better! Hugs and good thoughts to you and Alexa!
I’m so sorry that Alexa had a rough night last night. Prayers being said that she gets back on the road to recovery and stays there. Prayers, too, for the 3yo and family next to you.
Oh Lauren, I’m so sorry Alexa won’t be coming home today. Prayers are being said that she will be better soon! Hugs to you and your family. 🙂
Becky
I am so sorry to hear the Alexa isn’t coming home today. I will keep praying for all of you! You will be home soon!!!!
So sorry to read this post! My heart hurts for all that Alexa (and you) go through. We are still praying here at my house and you are on my mind many times throughout the day. Hugs, my friend. Also praying for Amber and her test tomorrow.
Oh Lauren, I was gonna call you later — hoping that you were going home today. So sorry to hear you’ll be there an extra day closer to the big party – I know you’re stressed about it. Hang in there, Girly. Regardless of when the party happens, you know it will be wonderful – you’ve put so much planning and effort into it. As for Miss A and Amber, give them big hugs from us and know that you are all in my prayers.
Oh Lauren–I’m so sorry! Can you postpone the party? People will understand and Alexa will enjoy having it to look forward to when she is feeling better. (My DS just reminded me that I havent’ done HIS b-day party yet and his birthday was May 19!) Prayers for you and Alexa and Amber. Stay strong! Hugs, Julie
Hugs, Lauren! Come here for your hugs as you take care of your babies.
I’m so sorry for the setback. I hope Alexa improves really quickly!
You are an extraordinary Mom, so just keep remembering that, and draw strength from your faith. I hope that Amber’s murmur is nothing serious. Your girls are such beauties! I know it is heartbreaking to have Alexa ill…but the treatments WILL get over with, and hopefully you can progress to more normalcy from there! Best wishes for a healthy, uneventful winter. Big {{{{HUGS}}}} to you and your girls.
I’m so sorry to hear about your’s and Alexa’s setback…. I wish there was something I could do to help! I will pray for you all and hope that your next post will be better news…. Take care of yourself!
~Lynda
Our thoughts and prayers are with you all. We will certainly keep Alexa in our top list of prayers. Mike & I have kept up with Wendi and her road with her daughter. These times are so tough. We lost a son 12 years ago and that kind of daily angst is hard. May God grace you with all the strength you need. Alexa seems so amazing!
Hang in there, Lauren! More prayers are on the way! Hugs to you!!!
I was so hoping to hear you guys were going to head home. I hope that Alexa gets better soon. You are def in my thoughts and prayers.
As your friend, if I could take away even a part of your pain and worries, I would. But I am here to offer you a shoulder to lean on, an ear to bend, and arms to hug. I will continue to pray for Alexa and now Amber and also for you. Love ya,
Renee
I only discover now that Alexa is sicker and in the hospital! 🙁
I don’t even know what to say because I feel like it is so unfair that you guys have to go through that yet again. I can only imagine how stressful and frustrating it is.
And overwhelming.
I keep you all in my thoughts and prayers and am confident that princess Alexa will be back in her castle in time for the royal celebration this week-end.
(((((hugs)))))
Prayers and hugs and more prayers and more hugs. I guess that’s all that we can do from here. Thanks for keeping us posted. C’mon, medicine, WORK your magic! Hoping that Amber’s appt. will go best as can be.
oh honey.
i’m sorry for all this crap going on.
no words, just prayers
I’m so sorry to hear this, my prayers are that she gets better soon! Hang in there! You’re such a good mommy, I’m sure it helps her so much when you’re positive and cheery even in the midst of all the downfalls and frustrations there.
There is no way I could ever imagine what you are going through. I am so sorry. Even though we have never meet or talked, reading your blog I feel as if I know you and your family. My heart goes out to you and your family are in my prayers.
I am sooo sorry to hear this. Try not to stress yourself over the party. It will go just fine when it happens!!!! I so wish I was closer so I could help you in some way or another. Know that Alexa and you are in my thoughts and prayers. Big HUGS for Alexa, and you!!!!
Don’t stress out about the party- You can always have it when Alexa is feeling better. Try to take one moment at a time and just know love ,prayers,and hugs are coming your way . All children should be aslucky as your two cuties to have you as their mommy.
Lauren,
Big hugs coming your way. Just remember that God is in control and everything happens in His timing, not ours. Praying for you, Alexa and Amber!!
Lauren, I will continue to keep you all in my thoughts and prayers. I’m sure all will work out just fine, it’s just taking longer than everyone had hoped. As long as she continues to do okay and get better, then we know our prayers are working. I can’t imagine all you are going through but know you have many friends here to listen when you need to talk.
Big hugs to you all
Dawn
Oh Lauren, I’m so sorry. We’re praying for you guys. You must be a wreck. Extra prayers for Alexa and Amber. Hang in there. I so wish I could just hop on my private jet and bring you some decent coffee with a shot of Kahlua in it. (((hugs)))
Lots of prayers being sent your way.
{{{hugs}}} and prayers for you, Alexa and Amber. I was so hoping that you could get out of there quick!
Still sending prayers your way! My heart goes out to you and everyone else in this difficult situation. Take care.
All the best to you guys. You are all in our hearts. Hang in there.
This is the first chance I’ve had to comment, but I’ve been following for the past few days, hoping to hear good news. My thoughts are with you, Alexa and your whole family. Please don’t stress over Alexa’s party. Even if it has to be post-poned, she’ll be thrilled just to wear that gorgeous princess dress and hang with friends and family. I hope that Amber hears good news at the dr. too. I’m thinking of you sweetheart. Relax.
Lauren,
I have been reading about your daughter Alexa. She is precious and I just wanted to let you know that you are all in my thoughts and prayers. I don’t know what it’s like to deal with a child that has cancer, but I do understand the endless amount of time spent with doctors and treatments and hospitals. We have been dealing with my mom’s cancer for the last two years. My heart goes out to you all!
Lauren. remember god is with you guys. Keep at peace and try to focus on the positive! I will keep the prayers coming. ~~hugs~~~ Stacy
Oh Lauren, you know how much we would love to help lift this burden from Alexa’s shoulders and of course from yours. Words fail me!!
Oh bummer Lauren, I was so hoping you and Alexa where going to make it home today! I will keep your family in my prayers for a speedy recovery for Alexa, that Amber’s heart murmer will turnout to be nothing you need to worry about and for strength for you and your husband.
Crud! I was so hoping Alexa would come home today. Don’t stress over Alexa’s party. It’ll be fine when it does happen, even with last min planning. Prayers for Amber’s appt too tommorrow. Jason will be a great fill in too.
Lauren,
Thinking of all of you and hoping that Alexa turns a corner and is better soon! Also, hoping Amber’s appt goes well and that it won’t be any sort of problem. Keep your chin up and take care of you too!
Lauren,
We are thinking about you and your family. We don’t know what lies, ahead but God does….keep your eyes on Him, He will never fail you.
Hugs &Prayers,
Pam in Ar.
Never, Never, Never are you seen as having a pity party!!! This is all so hard! We all ive so far apart, I wish I could just come and set that party up for you! Is there something I/we could do? Can we do invitations, party favors, make up games, put goodie bags together, anything? Everything fits into the mail. I remember when Robert’s sats were in the low 70 ranges and like you I so dread winter. But our children are strong! And the fact that she wanted to go play is great! Hang in there, we/re here for you. Big hugs for the princess and a super big hug for a great mom!
We prayed for Alexa tonight at bed time Lauren! Keep us posted and know we are all here for you!
So sorry you guys are still stuck at the hospital. Praying for Alexa and Amber and all of you…know you’re in His hands… Big Hugs…
Lauren, haven’t had a chance to get to the computer the last few days, and just now read about Alexa’s illness. Thoughts and prayers for Alexa, you and all of your family. Sending you a big hug and holding you tight; praying for better news tomorrow.
Oh Lauren….So so sorry! I just can’t imagine. It’s so hard to hear things like this being a nurse…and in my life, I was the “sibling” who experienced this situation. I feel for everyone. I pray for everyone in your family. It sounds like Alexa is a fighter wanting to go to the playroom during this time:) I -wish- I was close by to take Alexa’s siblings out for ice cream, or something, and offer support to them. I -wish- I could help you during this stressful time. I –pray– a discharge from the hospital soon:)
Hugs!!!
I am praying, praying, praying for a safe journey through this and HOME… and I agree — I wish that you have much support, and your family, too. You have it online, but in person as well… You do so much, that you deserve to have a place to vent. Not a pity party at all, but as a mother myself, I feel for you and yours. Blessings on you for a peaceful night. Let the party stuff go — it will be perfect just as it happens. These moments are precious, though painful, too.
I am terribly sorry tha Alexa is in the hospital again. My thoughts and my prayers are with you, Alexa and all of your family. I will also pray that Amber’s heart murmur is one that she will out grow as she gets older. Mine did. Think positive.
Hugs,
Mary from NH
I’m thinking of you and Alexa and hoping you return from the hospital very soon. Please take care. Heather J.
Lauren, I read your blog everyday. (love it:) I just wanted to you to know that I’m praying for you and your family. While, I’ve never had a child w/cancer I did go through some of these things with my father (when I was a young teenager) so, I know that it’s never easy. Just know that there are a lot of people pulling for you all and hopefully as goes well and your on your way home SOON!
Lauren,
I wish I was there to give you a great big hug!! You are such an example to me. You have been through so much in your life but yet you are so positive and uplifting. I will pray for Alexa and for your family as well. Just so you know….. you have touched my life in so many ways.
Love,
Robyn
Please know that you and your family are being prayed for. And the other families as well.
Oh goodness, when it rains it pours! The good news is that God won’t give us trials beyond what we can bear. You may be tired of hearing it, but it’s so true. After all, he formed us in our mother’s womb…Just wanted to give you a little encouragement. Many prayers for your whole family. My cousin’s son was diagnosed almost 4 years ago with leukemia (then 4 years old). He went through treatment for over 3 years and God has had mercy on them. I pray for mercy and peace for you, my sister in Christ. {Hugs}
I have no idea what it is like to go through this with a child I did go through a horrific battle with my dear sweet husband and lost him at 50. I would not wish any of t his upon anyone and my heart goes out to anyone going through it.
Praying for peace and strength for you and wisdom for the doctors and nurses and of course healing and comfort for dear sweet Alexa.
God is able to do immeasurably more than we ask him………
lauren
hoping for a quick recovery for the birthday girl,Ive done much time at childerns hospital in boston so I totally feel for you and you whole family. Stay strong ,they really need you!!!
Lauren
Your sweet family is my thoughts and prayers. I hope things begin to improve soon. My heart goes out to you and I wish there was something more that I could do for you.
I am sending all the good vibes I know to Alexa.
Leave a reply